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Team Ethan Great Strides

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naednek
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Team Ethan Great Strides

Post by naednek »

Team Ethan is back physically walking for Great Strides after 2 years of being virtual!

This year the walk is at the CHP academy. The Cadets have graciously allowed the Cystic Fibrosis Foundation to use their campus and the Cadets and volunteered their time to host us.

Kids are happy because the theme is candyland themed, which means there will be plenty of candy!

This morning we have reached our team goal, but we are overachievers!

Each year OO has generaously donated to help Ethan and 70,000 people who have Cystic Fibrosis. Money raised goes directly to research and funding new medication and therapies with the end goal of a cure!

Ethan is now 12 years old and is starting middle school in August! Healthwise he has been doing pretty well. We keep track of his liver disease, but everything else we've seen improvement. He no longer needs enzymes to digest his food. That took a way about 25 pills each day. He essentially now has to take vitamins, a 2 pills for his liver, and the miracle drug called Trikafta. That drug is the direct result of fundraising and we believe it is the reason why he no longer needs enzymes.

Tomorrow is our walk we invite you to donate if you would like to continue to make a difference in his life.
Here is the link to his page http://fightcf.cff.org/goto/Ethan

And here is this year's Team Ethan video.


Thank you!
Ken
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hepcat
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Re: Team Ethan Great Strides

Post by hepcat »

Oh, most definitely! :D

Looking good!
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naednek
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Re: Team Ethan Great Strides

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Thank you hepcat!
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AWS260
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Re: Team Ethan Great Strides

Post by AWS260 »

HE'S SO OLD!
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naednek
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Re: Team Ethan Great Strides

Post by naednek »

AWS260 wrote: Fri May 13, 2022 2:11 pmHE'S SO OLD!
Why yes he is, and moody
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naednek
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Re: Team Ethan Great Strides

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thanks AWS, Stimpy, and Yellowking! Truly appreciate it.
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Daehawk
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Re: Team Ethan Great Strides

Post by Daehawk »

I wish this was next month. I only have $7 in the bank :( Im useless.

But 12 years..wow. He is at that stage of 'eat you out of house and home' now.
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gbasden
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Re: Team Ethan Great Strides

Post by gbasden »

Done!
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hepcat
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Re: Team Ethan Great Strides

Post by hepcat »

Daehawk wrote: Fri May 13, 2022 7:30 pm I wish this was next month. I only have $7 in the bank :( Im useless.

But 12 years..wow. He is at that stage of 'eat you out of house and home' now.
I bet Ethan would appreciate your well wishes just as much as anything else. :wink:
I beat a camel to death with a monkey. Can I do that?
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You have to whack a few rabbits before you are ready to punch a camel.
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naednek
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Re: Team Ethan Great Strides

Post by naednek »

Daehawk wrote:I wish this was next month. I only have $7 in the bank :( Im useless.

But 12 years..wow. He is at that stage of 'eat you out of house and home' now.
No worries Daehawk. Kind words you have given over the years are as good thanks!

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naednek
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Re: Team Ethan Great Strides

Post by naednek »

Thank you gsbaden! Do you think MS will donate a penny for every mb my department consumes?

If so, let me work on this script real quick :)

Joking aside have you checked about them matching donations?

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Kraken
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Re: Team Ethan Great Strides

Post by Kraken »

Wow, 12 years old and walking already!

BTW, if the page doesn't load, disable DuckDuckGo.
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Daehawk
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Re: Team Ethan Great Strides

Post by Daehawk »

hahaha walking already..made me laugh.
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Re: Team Ethan Great Strides

Post by Lassr »

Contributed. Wow, 12, times flies.
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naednek
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Re: Team Ethan Great Strides

Post by naednek »

Lassr wrote:Contributed. Wow, 12, times flies.
Thank you.


Yep time flies by.

Not to get dark but 40 to 50 years ago many children with CF didn't even get to see age 12. It was considered a child's disease for so long. The last twenty years there has been huge progress. Now the foundation has adjusted their mission for assisting people well into their 40s and 50s and retirement and how to treat people as they age.

The median age is now in the mid 40s. That's where I'm at and I look how long that is and man that's not enough.

Anyways. Thank you all

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gbasden
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Re: Team Ethan Great Strides

Post by gbasden »

naednek wrote: Fri May 13, 2022 10:03 pm Thank you gsbaden! Do you think MS will donate a penny for every mb my department consumes?

If so, let me work on this script real quick :)

Joking aside have you checked about them matching donations?

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Yep! That donation was matched 100%.
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naednek
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Re: Team Ethan Great Strides

Post by naednek »

Thank you allImageImageImageImage

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