Team Ethan Great Strides
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- naednek
- Posts: 10875
- Joined: Tue Oct 19, 2004 9:23 pm
Team Ethan Great Strides
Team Ethan is back physically walking for Great Strides after 2 years of being virtual!
This year the walk is at the CHP academy. The Cadets have graciously allowed the Cystic Fibrosis Foundation to use their campus and the Cadets and volunteered their time to host us.
Kids are happy because the theme is candyland themed, which means there will be plenty of candy!
This morning we have reached our team goal, but we are overachievers!
Each year OO has generaously donated to help Ethan and 70,000 people who have Cystic Fibrosis. Money raised goes directly to research and funding new medication and therapies with the end goal of a cure!
Ethan is now 12 years old and is starting middle school in August! Healthwise he has been doing pretty well. We keep track of his liver disease, but everything else we've seen improvement. He no longer needs enzymes to digest his food. That took a way about 25 pills each day. He essentially now has to take vitamins, a 2 pills for his liver, and the miracle drug called Trikafta. That drug is the direct result of fundraising and we believe it is the reason why he no longer needs enzymes.
Tomorrow is our walk we invite you to donate if you would like to continue to make a difference in his life.
Here is the link to his page http://fightcf.cff.org/goto/Ethan
And here is this year's Team Ethan video.
Thank you!
Ken
This year the walk is at the CHP academy. The Cadets have graciously allowed the Cystic Fibrosis Foundation to use their campus and the Cadets and volunteered their time to host us.
Kids are happy because the theme is candyland themed, which means there will be plenty of candy!
This morning we have reached our team goal, but we are overachievers!
Each year OO has generaously donated to help Ethan and 70,000 people who have Cystic Fibrosis. Money raised goes directly to research and funding new medication and therapies with the end goal of a cure!
Ethan is now 12 years old and is starting middle school in August! Healthwise he has been doing pretty well. We keep track of his liver disease, but everything else we've seen improvement. He no longer needs enzymes to digest his food. That took a way about 25 pills each day. He essentially now has to take vitamins, a 2 pills for his liver, and the miracle drug called Trikafta. That drug is the direct result of fundraising and we believe it is the reason why he no longer needs enzymes.
Tomorrow is our walk we invite you to donate if you would like to continue to make a difference in his life.
Here is the link to his page http://fightcf.cff.org/goto/Ethan
And here is this year's Team Ethan video.
Thank you!
Ken
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- hepcat
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- naednek
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- AWS260
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Re: Team Ethan Great Strides
HE'S SO OLD!
- naednek
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Re: Team Ethan Great Strides
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- naednek
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Re: Team Ethan Great Strides
thanks AWS, Stimpy, and Yellowking! Truly appreciate it.
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- Daehawk
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Re: Team Ethan Great Strides
I wish this was next month. I only have $7 in the bank Im useless.
But 12 years..wow. He is at that stage of 'eat you out of house and home' now.
But 12 years..wow. He is at that stage of 'eat you out of house and home' now.
--------------------------------------------
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I guess Ray Butts has ate his last pancake.
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"Has high IQ. Refuses to apply it"
I am Dyslexic of Borg, prepare to have your ass laminated.
I guess Ray Butts has ate his last pancake.
http://steamcommunity.com/id/daehawk
"Has high IQ. Refuses to apply it"
- gbasden
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- hepcat
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Re: Team Ethan Great Strides
I bet Ethan would appreciate your well wishes just as much as anything else.
He won. Period.
- naednek
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Re: Team Ethan Great Strides
No worries Daehawk. Kind words you have given over the years are as good thanks!Daehawk wrote:I wish this was next month. I only have $7 in the bank Im useless.
But 12 years..wow. He is at that stage of 'eat you out of house and home' now.
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- naednek
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Re: Team Ethan Great Strides
Thank you gsbaden! Do you think MS will donate a penny for every mb my department consumes?
If so, let me work on this script real quick
Joking aside have you checked about them matching donations?
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If so, let me work on this script real quick
Joking aside have you checked about them matching donations?
Sent from my Pixel 6 Pro using Tapatalk
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- Kraken
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Re: Team Ethan Great Strides
Wow, 12 years old and walking already!
BTW, if the page doesn't load, disable DuckDuckGo.
BTW, if the page doesn't load, disable DuckDuckGo.
- Daehawk
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Re: Team Ethan Great Strides
hahaha walking already..made me laugh.
--------------------------------------------
I am Dyslexic of Borg, prepare to have your ass laminated.
I guess Ray Butts has ate his last pancake.
http://steamcommunity.com/id/daehawk
"Has high IQ. Refuses to apply it"
I am Dyslexic of Borg, prepare to have your ass laminated.
I guess Ray Butts has ate his last pancake.
http://steamcommunity.com/id/daehawk
"Has high IQ. Refuses to apply it"
- Lassr
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Re: Team Ethan Great Strides
Contributed. Wow, 12, times flies.
The only reason people get lost in thought is because it's unfamiliar territory.
Black Lives Matter
Black Lives Matter
- naednek
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Re: Team Ethan Great Strides
Thank you.Lassr wrote:Contributed. Wow, 12, times flies.
Yep time flies by.
Not to get dark but 40 to 50 years ago many children with CF didn't even get to see age 12. It was considered a child's disease for so long. The last twenty years there has been huge progress. Now the foundation has adjusted their mission for assisting people well into their 40s and 50s and retirement and how to treat people as they age.
The median age is now in the mid 40s. That's where I'm at and I look how long that is and man that's not enough.
Anyways. Thank you all
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- gbasden
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Re: Team Ethan Great Strides
Yep! That donation was matched 100%.
- naednek
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Re: Team Ethan Great Strides
Thank you all
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Sent from my Pixel 6 Pro using Tapatalk
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